| アブストラクト | Background Learning disability registers in UK primary care support proactive care, but under-identification remains substantial. The 2019 NHS Long Term Plan introduced targets to increase enrolment. Aim To estimate prevalence and rates of new registration to learning disability registers among young people aged 14-24 years in England and examine changes following the introduction of national targets. Design and setting Population-based open cohort study using routinely collected primary care data from general practices in England contributing to the Clinical Practice Research Datalink (CPRD) Aurum database, 2015-2023. Method Young people aged 14-24 years who had been registered at least 6 months were included. Annual rates of new registration per 10,000 person-years at risk (PYAR) and recorded prevalence were calculated, stratified by age, sex, region, and year. Results Between 2015 and 2023, 11,776 young people were first recorded on a learning disability register. Rates of new registration increased in 2020-2021 across ages and sexes, peaking at 15.8 per 10,000 PYAR in males aged 14-17 years and 8.4 per 10,000 in females before returning to pre-2019 levels by 2023. Recorded prevalence remained low overall (0.03%-0.5%; 3.6-52.7 per 10,000) but increased among those aged 18-24 years, with eight-to-ten-fold rises between 2015 and 2023. Prevalence was higher in males (rate ratios 1.7-1.8, 95% confidence interval 1.6-1.9). Conclusion National targets coincided with a temporary rise in enrolment, but identification remains below expected prevalence. Sustained policy focus and systematic identification and coding by practices are needed to ensure equitable access to preventive care during the transition to adulthood. |
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| ジャーナル名 | The British journal of general practice : the journal of the Royal College of General Practitioners |
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| Pubmed追加日 | 2026/7/3 |
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| 投稿者 | Shah, Rakhee; Horridge, Karen; Saxena, Sonia; Hargreaves, Dougal S; Petersen, Irene |
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| 組織名 | Imperial College London School of Public Health, London, United Kingdom of Great;Britain and Northern Ireland shah.rakhee87@gmail.com.;South Tyneside and Sunderland NHS Foundation Trust, Sunderland, United Kingdom of;Great Britain and Northern Ireland.;Britain and Northern Ireland.;Imperial College London, Mohn Centre for Children's Health and Wellbeing, School;of Public Health, London, United Kingdom of Great Britain and Northern Ireland.;University College London, Department of Primary Care and Population Health,;London, United Kingdom of Great Britain and Northern Ireland. |
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| Pubmed リンク | https://www.ncbi.nlm.nih.gov/pubmed/42392836/ |
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